Laura’s Journey. . .

On and on

November 7, 2009 · Leave a Comment

hour glassThis whole cancer ordeal just seems to go on and on doesn’t it?  I was mistaken that once I finished treatments that it’d be all over, cause it ain’t.

I’m better about it now, but I remember a few months ago, I worried every time I went in for my 3-month mammogram check – I remember telling myself I’m not going to be scared of the “what ifs”.  All fine and dandy, I got past the fear of re-occurrence as much as I can; as much as any of us who have had cancer can I reckon.  You just say the *ell with it, and go on, at least I did.

Well one of my buddies is dealing with a re-occurrence that has metastasized and I’ll tell you what, I went into such a heart sickness for her, it still makes my heart ache if I think about it too long…  I’m going to try to help her out as much as I can and I will keep myself well and balanced at the same time for I ain’t going to be no good if I boo-hoo every time I see her :(

Cancer is pissing me off.

As for myself,  I finally get to have surgery and get “balanced” in about 2 weeks and then I can put that ding dong prosthesis to rest.  I can’t burn it because I’m sure that would be bad for the environment, all that rubber, blah.  I don’t know if I can even bury it because I don’t know if it’ll ever decompose, but I think that’s what I’m going to do.  Bury it in my yard.  Then I’m going to cry.  Then I am going to go on and on…

Laura

→ Leave a CommentCategories: Beyond Cancer · Cancer Treatment Aftermath · Transitioning from Patient to Survivor
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Empowered Patient

October 25, 2009 · Leave a Comment

This is an interesting series on CNN Health that I just found out about, and they had this great article on options that I just had to share!

http://www.cnn.com/2009/HEALTH/10/24/breast.cancer.options/

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What Now?

October 24, 2009 · Leave a Comment

WhyI’m now one year of no evidence of disease (which by the way Halleluiah!)  and I’m getting ready to get “balanced” out, literally.  I go in for one more surgery in a few weeks to regain symmetry, which by the way, YAHOO!  It absolutely sucked being a size b and a size d, and I am about sick and tired of my prosthesis.  I just want to buy bras that fit and not have to wear scarves, vests or baggy shirts all the time to cover up my very pronounced lopsidedness.  I just want to go back to somewhat being normal… in more ways than one.

Which brings me to, what now?

I’m happy to be coming to the end of this long pain in the *ss haul and some days I’m like OK, it is what it is; then other days  I just want to scream on the top of my lungs!  Jiminy!  I just don’t know some days.

I’m now a cancer advocate and cancer education trainer; I’m driven to help survivors share their story and regain their voice, and some days cancer just makes no sense to me at all, what a rotten, mean disease it is.  I just hate seeing people go through the pain of cancer – I once heard it referred to as a soul wounding… and I think I’ll have to agree with that, because once you come out the other side you wonder what that was all about, who you are, what you are…  and you try to stay away from the question why, because it provides no answers at all.

However, the one thing I am certain of and am so continually amazed by, is the beauty and strength of survivors

Sometimes you come out on the other side just full of questions and not enough answers…

→ Leave a CommentCategories: Cancer Treatment Aftermath · Recovery · Surviving Cancer Treatments · Transitioning from Patient to Survivor
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Raging Mad

October 14, 2009 · Leave a Comment

Raging Mad

Today I am so mad, so angry about cancer!  I’m mad mad mad!

One of my dear friends is looking at metastasis breast cancer that has traveled  from the original area!  And I’m so mad!!!  I want cancer to end now!  I don’t want people to suffer from this pain in the *ss disease!  Get involved! Share your Story!  Spread the Word!  End Cancer Now!

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Reflecting

September 13, 2009 · 2 Comments

single_roseHere I am, almost a year out from treatments and I was reading some of the comments left, some of the stuff I wrote, and it almost seems like another lifetime…

One  year later and I’m still trying to regain my health, which is so much better than last year at this time, but I still have some issues… fatigue being the biggest pain in the who-who and the unexpected tears that come out of the blue sometimes…

Sometimes I wonder if it is because I spent almost a 1.5 yrs. trying to fight this disease and going through treatments, that sometimes I wonder if I’m pre-conditioned to being sad :(

I’m not sad all the time but it seems when I do get sad, it is so profound, not like “before”;  I’m sure it is the last remnants of grief that all of us who have had cancer have to deal with – grieving over loss of health, loss of lifestyle, blah blah blah.  Sometimes I still get emotional when I talk about chemotherapy and I’ve been told by other survivors that the further out I get this too will pass – that all of this junk that I live with right now will pass.

Sometimes reflecting is sad, but for me right now, it is a BIG SIGHHHH…

→ 2 CommentsCategories: Beyond Cancer · Recovery · Transitioning from Patient to Survivor
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Today I’m 11 Months Out

August 28, 2009 · Leave a Comment

Me July 27, 2009I’m 11 months out from my last Herceptin treatment, 11 months out and joyously counting :D   September 28th, I’ll be able to say one year out from treatments and in October I’ll be celebrating one year of dancing with NED (no evidence of disease!) :D

Time sure flies when  you’re having fun don’t it? LOL

The struggle to be well continues, but I am so much stronger than I was a year ago at this time, that’s a big 10-4!  I also hardly take naps any longer, which is kinda a relief, all those naps were making it hard to get anything done.  I still get tired easily, but I just keep on keepin’ on,  sometimes I cry because I’m so tired and run down, but what the hey, it comes with the territory.

Chemo-brain is still an irritant, but not as bad as a few months ago; school is still a challenge, and multi-tasking is still a problem, but that’s ok, I’ve learned to just do one thing at a time, and you know what?  It’s not so bad :D   I get things done, and that’s what counts.

It has been a hellueva ride my friends, one I wish not to take again…

→ Leave a CommentCategories: Beyond Cancer · Cancer Treatment Aftermath · Transitioning from Patient to Survivor

Up and Down

August 15, 2009 · 2 Comments

seesawHmmm, it seems like when you sign on this journey (in response to myself below :D ) you go from a rollercoaster ride, to being a yo-yo to now a see-saw LOL Up and down up and down LOL  Even though you KNOW this is going to happen, some days it is just difficult to deal with it.  Holy Moly, I cannot wait for this to be over :D

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Rest, rest and blah

August 13, 2009 · Leave a Comment

too-tiredWhen I was recruited for this journey I didn’t realize I was signing on for such a long journey… I’m now 10 months out from my last Herceptin treatment, a month out from my last Zometa treatment and I’m still friggin’ tired :(

I’m able to function don’t get me wrong, I go to work and only fall asleep once in a while on my desk ;)  and I’m now up to walking 5x a week, so what gives?  When is this ding dong fatigue ever going to go away?  When?! 

I’ve been so tired for so long  it  is starting to mess with my head, and the tears just keep on coming when I’m tired…  I am so tired of dealing with this and tired of being tired; if it wasn’t for my friends, I’d think I was depressed, gads, that’s all I don’t need, but I can’t help but think about it because who in their right mind would cry when someone is being nice to you?  Me, that’s who.  I’m so friggin’ tired.

In this last week, it has hit me like a ton of bricks about how much I’ve been through, how much I’ve lost, and it just makes my heart so sad :(  add being tired to the mix, and jiminy, what a mess!

One foot forward, one foot forward.

→ Leave a CommentCategories: Cancer Treatment Aftermath · Surviving Cancer Treatments · Transitioning from Patient to Survivor
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Some Days

August 8, 2009 · Leave a Comment

sad faceSome days I swear are harder than others and today was one of those days…  sometimes it hits me real hard of all the stuff that has happened in the last 2 years,  jiminy…  Surviving cancer treatments definitely isn’t for sissies.

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Laura – 1, Zometa – 1

July 18, 2009 · Leave a Comment

knocked_downMaking a cameo appearance ;) to update about Zometa; the last time I had it, it kicked my butt!  It hurt so bad, that I didn’t want to do it again ever!

After awhile you get tired of being in pain and having to deal with the drugs and then the drugs to take the drugs, blah, blah, blah.  (It is good to complain about it!) So anyhoos, I had to go in for Zometa this week and I wasn’t looking forward to it, in fact I did all kind of delay tactics which didn’t work in the long run ;)

Well this time, it just gave me a kick hard enough to knock me down but not out!  Instead of feeling like I have the worst flu in the world, I just feel like I have a rotten cold, it is handable, unlike the last time.

Last time I thought I was having a heart attack, I was feverish, and my muscles were all cramping up (I do mean all!), now this time, I just had a bad headache, feel like I’m sick, and moved like I was 100 years old for a few days; now today, I almost feel A-OK again.  Jiminy!  Cancer treatments sure seems like a never ending kick in the butt… but I’ll win, you just wait and see ;)

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Words, Ramblings, and Rumblings

June 27, 2009 · 2 Comments

Howdy folks ;) it has been a long time since I have posted, but something has come up this week while I have been emailing back and forth with friends, that I decided I had to come out of semi-hibernation/retirement to post again.

  1. Wondering and Questioning my SanityI have been wondering how folks are doing, and been wondering if they are like me, doing pretty good, but still tired, still very forgetful, still taking tons of medications, and easily irritated…
  2. I have been wondering if my irritation is making me rumble more than usual and if my irritation is making me dissect words…

Before cancer, isn’t that funny, BEFORE CANCER, how that term has become a part of my life, sigh… Words like Pink, Warrior, Survivor, Thriver, weren’t even on my horizon, I didn’t even give them two seconds of thought, and now AFTER CANCER, they irritate me to no end…

I’ve been trying to figure out what it is that makes me so irritated with these words, and I think it is because they are not adequate to describe what a woman or man deals with when diagnosed with cancer.  I wrestled with these words for quite sometime, and I’m not able to pinpoint what irritates me so much about these words – maybe because they were not in my volcabulary BEFORE, now they are everywhere.  Maybe because I hate labels, and people slap labels on me at a drop of a hat once they find out I had cancer…

Pink has always irritated me, and I’ve written about it before but now I have found a website that succinctly describes why it was irritating me – it is because people are making money off of breast cancer, and that is just not right (http://www.fightpink.org/). 

I also think Pink makes breast cancer “cute” “oh look at that cute pink ribbon water bottle” “oh look at that cute pink warrior t-shirt” “oh look at that cute pink survivor ;) “  LOL  I absolutely cannot stand how when I wear a pink shirt or vest, people think I’m doing it because I had breast cancer, arggghhhhhhh!  I wear pink coz it is a cool color to wear!

Now don’t get me wrong, I’m glad that we have symbols so I’m not knocking pink ribbons mind you, I’m just knocking how this pinking of breast cancer seems to make it acceptable…blah.  Cancer should never be acceptable in any shape or form.  I think this “pinking” is making it acceptable to be another “statistic” in this long-battle with Breast Cancer…

As I try to transition from PATIENT to SURVIVOR, I also find I’m irritated with being called a “survivor,” noooo, I’m Laura, a mother, a friend, a coworker, a Tlingit Woman, who faced a disease that I wish no one had to face.  I faced a disease called CANCER, and it’s treatments KICKED MY BUTT, but I’m still Laura, a mother, a friend, a coworker, a Tlingit Woman.

I wish I had an answer, I wish I had words that would help me make peace with all of these words that have become associated with cancer, but I don’t, I’ve been pinked and survived to the point where I’m having problems trying to think outside the box… 

Breast Cancer sure has made me thoughtful… and a little more irritable… jiminy.

→ 2 CommentsCategories: Beyond Cancer · Cancer Treatment Aftermath · Recovery · Transitioning from Patient to Survivor

Onwards and Upwards

April 17, 2009 · 6 Comments

Dear Friends,

Thank you for all of your wonderful, wise words in the last year and a half; your words made me laugh, made me cry, made me realize we are not alone in our battles against cancer treatments, and that so much still has to be done for those who will survive active treatments…

I have been busy living with my new “normal” :) ways of doing things, a little slower, a little more forgetful, a little more thoughtful.  Cancer and chemotherapy has impacted me in ways that I was not expecting.  I’m more thoughtful for one thing, I’m more thoughtful about how I spend my time, I’m more thoughtful about what causes I throw my energy in, I’m more thoughtful about God, and I’m more thoughtful about me. 

Before the “Big C” I was busy having a good time, life was good!  I was active, I was looking pretty darn good, I was dating, I had a good job, I was learning to be a Native Leader, you know, I was having a good time!  Then I got cancer again and my whole world got turned upside down and emotional chaos was my best friend :(   I didn’t like myself, I was so unsure of myself, I was depressed and I didn’t want to do nothing.  And after living in this state for almost 2 years, it has become like a bad habit that I’m trying to break; welll, I’m almost there :)

When I started this blog, it was to share my story with those who will follow.  When I was diagnosed and facing chemo, radiation, herceptin and hormone therapy, I didn’t know what to expect.  Boy did I not know what to expect and it scared me a lot :( I just couldn’t see not sharing with those who will follow what it was like to go through cancer treatments and almost lose your marbles, to go through cancer treatments and lose so much of yourself, to go through cancer treatments and still come out of it intact…

Laura’s Journey has been a tribute to all people who live with cancer, my story has been their story, their story has been my story, and I have been so blessed with all the people I have encountered along the way.  Sharing my story has helped me through some of my darkest days and  has helped me laugh and cry my way through cancer and that was worth its weight in gold!

Now that I am on the road to recovery, I do not feel the need to write so often, and I’m coming to a close on this chapter in my life – this part of my journey is coming to an end.  I will still stop by every now and then, but I am busy again in college (which has its problems thanks to Chemo-Brain!); I’m rediscovering art and rewiring my brain with the book “The Artist Way” (which I strongly recommend), I am helping other people newly diagnosed as a career, and I am trying to regain my health!  I’m still tired a lot and by the end of the week I am so dragging my butt, by Wednesday I need a nap, by Thursday, I need two naps to make it through the day, and by Friday, I’m like “OK, I made it through another week.”  I know this will too pass, but it sure seems like it is taking forever.

I want to thank you all who have hung with me during this journey with all my heart, thank you just doesn’t seem adequate, you know what I mean?  I will keep this site up for a few more months, and maybe post once in awhile, but this part of my life is coming to a close, and it is time to move on.

People can still reach me by posting on here, and if they do not want their comments to be public, put write in your post:  “please do not make this public” and I won’t.  If you post a note here privately or publicly, I see your email address, but no one else does unless you check you want your email public.  Either way, if you want, I can privately email you.  I do hope you will still feel free to post on the previous pages since this story is all of our story, we all share this journey ;) and I’ll still answer your posts while this site is up.

A Single Rose for my FriendsThank you my friends, I wish you strength, wellness and peace, as we now move into our “new normal” way of doing things; I have been honored and blessed by your words.

One foot in front of the other, always,

Laura

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