I wrote about the joys of chemo-brain at:
http://www.indiancountrytoday.com/living/health/82709077.html
The article was based on several of my posts here about dealing with chemo-brain. Oh the joy of dealing with cancer treatments eh?
I wrote about the joys of chemo-brain at:
http://www.indiancountrytoday.com/living/health/82709077.html
The article was based on several of my posts here about dealing with chemo-brain. Oh the joy of dealing with cancer treatments eh?
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Tagged: chemo-brain, humor in cancer, overcoming treatments, recovering
With all the medical information out there and “cures” touted left and right, it can get confusing what to believe any more. These two websites are similar and are run by the same doctors, and the best way to use them is to use their search tool to look up information or a person.
I have no vested interest in either of these sites, I just want to share these links because we have some people WHO ARE not credible in their claims to help “cure” you from cancer, aches, pains, etc., and it just frosts my fritters that we have such unscrupulous people out there preying on others!
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Tagged: cancer misinformation, cancer quackery, debunking cancer cures
Today I had to go to the dentist – ever since I’ve had chemo and radiation my teeth seem to chip at a drop of a hat. Seriously, I was eating a little cracker and a couple of my teeth cracked and chipped.
So today, I had to go in and get one of the molars fixed. I got the numbing shots, they put in the “boot”, then they put the rubber sheet over my mouth, and then dentist and hygienist were bending over me ready to go to work AND I FREAKED!
I got all claustrophobic, shaky, I couldn’t breathe, and I started to cry. Sheesh!!!
I have had this problem ever since my treatments, MRIs, pet scans, surgeries… I never had this problem BEFORE…
I tried to overcome the panic with deep breathing and WILLED myself to be calm, but I just couldn’t overcome the panic and we couldn’t fix my teeth
I’m going to try and see a cancer counselor tomorrow because this is absolutely awful!! It seems like ever since my treatments, MRIs and Pet Scans, I’m prone to claustrophobic/panic attacks; I’m having more and more problems getting mammograms, going to the dentist or doctors or flying in small planes…
No one warned me that my mental health was going to suffer in this way… sheesh, too much trauma causes too much drama!
→ Leave a CommentCategories: Beyond Cancer · Recovery · Transitioning from Patient to Survivor · aftermath
Tagged: claustrophobic, emotional, emotional rollercoaster, frustration, panic, recovering from cancer treatments
You know once you’re done with treatments, it seems to take FOREVER to feel on top of your game again. Some days I’m full of piss and vinegar and others it is like I’m running through quicksand, jiminy crickets! Why doesn’t anyone say how long this takes?
I talk with other survivors and I’m assured that one day this will all pass
but until then I’ll have high days and then I’ll just have slower days; nature of the beast…
I’m not sure if anyone has seen the booklet Facing Forward, I haven’t read it yet, but here’s a blurb from it:
“When treatment ends, you may expect life to return to the way it was before you were diagnosed with cancer. But it can take time to recover. You may have permanent scars on your body, or you may not be able to do some things you once did easily. Or you may even have emotional scars from going through so much. You may find that others think of you differently now—or you may view yourself in a different way. One of the hardest things after treatment is not knowing what happens next.”
Isn’t that the truth? Isn’t that the stinkin’ truth? I think as more people come forth and share their stories, and as there are more cancer survivors, the better we’ll be able to prepare those who will follow… who knows, maybe between all of our collective experience, we may figure out how to help one another through this last lag of our recovery eh?
If you want to see the booklet above go to “Life After Cancer” and click on view PDF.
January 16 Update: Has anyone read “How to Live Well Beyond Breast Cancer” by Dr. Marisa Weiss? There is a good write-up about this book at the New York Times.
I wish you strength and wellness
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Tagged: Beyond Cancer, healing from cancer, life after cancer treatments
I have ranted before on here about being positive (see Rants and Raves) and how it drives me crazy. It seems like when one has cancer they lose the right to complain you know? People say you’re “being negative”, how insensitive is that?
I am reading a very thought-provoking book, and I have to say, I agree with a lot of what the author has to say so far and I am intrigued. The book is “Bright-Sided” by Barbara Ehrenreich and she has put positive thinking under a microscope. Her and some other credible folks think we need to think “clearly” and not brush off everything to “be positive”, this has led the “positive-thinkers” to call her and those like her, Negatives. Has our culture gone so far overboard with thinking everything can be solved by “thinking positive?” And that anything outside of it is negative?
I’m half-way through the book and someone asked me if I was now one of the “Negatives” (read the book and you’ll understand); well, you know me, I’m an upbeat kind of a person, but I ALSO believe in honoring your feelings. I advocate for people to share their stories and let it out, but somehow people equate showing less then stellar emotions as being negative and I think that is ridiculous.
By people spouting “be positive” “think positive” they disrespect a person’s feelings. It’s like our society doesn’t allow you the right to be mad or sad – you’re suppose to stuff those feelings way down and just be Pollyanna Sunshine and no more is this apparent then when you have cancer.
When I was going through treatments, I heard some stupid stuff: “if you think positive you’ll get better” or “maybe you caused this because of your feelings” or the one I hate the most is “maybe God is trying to tell you something.” My response has always been “no it is a DISEASE and a hard one at that.” “My thinking didn’t cause the cancer nor is it a punishment from God for past behaviors, IT IS A DISEASE.” Then I go on to say I wouldn’t wish it upon anyone and that I got through it, but it was a hard road to hoe…
The other thing I dislike about this whole “positive” thinking especially around cancer, it makes having cancer ok and that totally pisses me off. We are making cancer “cute” “acceptable” and this is NOT OK! Check out fightpink.org – they are totally against the “pinking” of cancer because it makes cancer cute. Being positive glosses over facts and some facts of life we need to pay attention to, change it , learn from it or be prepared for it – being “positive” about everything does not honor yourself or your feelings, especially those hard feelings that we all face during cancer: grief, anger, fear… these feelings are not negative, they are real and they are a part of us. We all find ways to deal with it, and one of those ways is to share your story, honor your story, feelings and all.
So I don’t consider myself a “Negative” as much as a person who advocates for letting those hard feelings out and this is not negative, I think it only becomes “negative” when you let it take over your life, hurt yourself or others or when you stuff your feelings. So maybe I’m a Realist who doesn’t believe you can “positive-think” everything away, but this in no way makes me a negative person.
Check out the book, see what you think.
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Tagged: bad attitude about cancer, dealing with cancer, emotions, mad about cancer, negative, positive, surviving cancer
I picked up some bad habits or behaviors that became bad habits, while in cancer treatments and I am having problems trying to shake them:
I know a part of this is because I awoke slightly frustrated this morning and achy, and because I am kinda tired of being tired and tired of not wanting to do much. This frustration makes me forget all the progress I have made so far and that I need to focus on the little steps… like I did in chemotherapy, one step at a time. One step at a time…
Arggggggh! Trying to shake off these thoughts, these behaviors, theses habits, and transition back to myself BEFORE THE BIG C is a BIG pain in the *ss!
→ 4 CommentsCategories: Beyond Cancer · Transitioning from Patient to Survivor · aftermath
Tagged: cancer survivorship, emotions, frustration, healing from cancer, healing from cancer treatments
Take twelve fine, full-grown months; see that these are thoroughly free from old memories of bitterness, rancor and hate, cleanse them completely from every clinging spite; pick off all specks of pettiness and littleness; in short, see that these months are freed from all the
past—have them fresh and clean as when they first came from the great storehouse of Time. Cut these months into thirty or thirty-one equal parts. Do not attempt to make up the whole batch at one time (so many persons spoil the entire lot this way) but prepare one day at a time.
Into each day put equal parts of faith, patience, courage, work (some people omit this ingredient and so spoil the flavor of the rest), hope, fidelity, liberality, kindness, rest (leaving this out is like leaving the oil out of the salad dressing— don’t do it), prayer, meditation, and one well-selected resolution. Put in about one teaspoonful of good spirits, a dash of fun, a pinch of folly, a sprinkling of play, and a heaping cupful of good humor.
~ Anonymous
———————————————-
I know when going through treatments and cancer, this may seem impossible and what I did is I tied a knot and hung on for all I was worth! It is possible to enjoy the moments when you can and I am so grateful I did.
Here I am one year out, still trying to reclaim my self and my health, but I am here for another New Year. Here’s to all of us healing and coming from a place of strength and peace. Hugs.
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Tagged: breast cancer, chemotherapy, healing from cancer, radiation
Are a brave breed unto themselves aren’t they?
I’m probably like most cancer patients, I became close to my nurses, couldn’t help it, I spent more time with them for a year than I did with anyone else
My nurses were so incredibly kind and I wondered how day after day they could see patient after patient in various stages of cancer and still be so caring and kind to each of us? I think the nurses who go into oncology care are amazing, at least I think my nurses were.
They held my hand, they let me cry, they let me get goofy in the infusion room
they just let me let it all hang out; I’m forever grateful to Millie, Kim, Yukie, Mel and Michelle for being there for me. It was a sucky way to meet, but I’m so glad I met you all
Oncology Nurses ARE AMAZING, and there is an honor your oncology nurse award contest going on right now at Cure Today, I hope you’ll participate
→ Leave a CommentCategories: Beyond Cancer · Chemo · Surviving Cancer Treatments · Transitioning from Patient to Survivor · surviving cancer
Tagged: nursing, oncology
We Wish You a Merry♪♫•*¨*•.¸¸♥ ¸¸.•*¨*•♫♪ Christmas♪♫•*¨*•.¸¸♥ ¸¸.•*¨*•♫♪We Wish You a Merry ♪♫•*¨*•.¸¸♥ ¸¸.•*¨*•♫♪Christmas ♥ ♥ ♥We Wish You A Merry ♪♫•*¨*•.¸¸♥ ¸¸.•*¨*•♫♪Christmas ♪♫•*¨*•.¸¸♥ ¸¸.•*¨*•♫♪…And A Happy New Year!♪♫•*¨*•.¸¸♥ ¸¸.•*¨*•♫♪
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Hmmm, it seems for the last two years my holidays have revolved around healing and/or fighting cancer. Last year I wrote how to deal with the holidays and treatments: http://laurasjourney.com/2008/12/ and the year before I was in treatments and that’s about all I could write about! (http://laurasjourney.com/2007/12/).
Now here we are in 2009 and what am I doing? Healing.
Healing from reconstruction/reduction surgery that I had on November 23rd. I didn’t realize I was going to be such a tender vittle for such a long time! I also didn’t realize that for 3 years in a row during the holidays, I’d still be dealing with cancer-related issues.
I think facing cancer during the holidays is no fun: your emotions can plunge suddenly; you have tears of joy, nostalga, grief, pity and sometimes this can happen all at once! I know I know – it is enough to drive a woman over the deep end ;) but you keep on keepin’ on. If there is any time of the year that requires you to find your hidden courage while dancing with cancer, it has to be the holidays.
You have find your courage to face your family, coworkers, friends, anyone really, without bawling your eyeballs out. You find courage within yourself to make peace with where you are at right now so that your family is not too scared… so that you’re not too scared. You find the courage within yourself to keep up the traditions of the holidays as best you can.
I remember when I was going through chemo during the holidays, when someone would ask me how I was doing, I’d make jokes and imitate the cowardly lion, “Put ‘em up, put ‘em up! I can fight you with one paw tied behind my back. I can fight you standing on one foot. I can fight you with my eyes closed.” LOL It’d make me and whoever was worried about me just laugh!!!
Cancer and holidays, jiminy crickets! I still have grief bursts that come out of the blue to this day, just not as much as last year or the year before, but I still have them. I also still get tired way too ding dong easy, but at least I’m out and about this year! Despite these “issues”
I also have intense feelings of gratefulness during the holidays.
Grateful that I am here to share another holiday, grateful that I made it another year, grateful that I am getting stronger and stronger. Grateful that I can still laugh and I guess that is what true courage is during the holidays, being able to laugh when you have every right not to. Whatever it is, I’m glad I had the courage to cry, to laugh, and most of all, the courage to be grateful
I wish you peace, wellness and strength during the holidays and always.
→ Leave a CommentCategories: Beyond Cancer · Cancer Treatment Aftermath · Recovery · Surviving Cancer Treatments · Transitioning from Patient to Survivor · surviving cancer
Tagged: cancer, courage, holidays
I thought by the time I hit 50, I’d be all “grown-up;” but I feel like I still have lots of growing to do.
I thought by the time I hit 50 I’d be old, but I’m not. I still feel like a kid most of the time, and I act like it a lot of the times
I also have learned a few things on my way to being 50.
I have learned change is the only constant and that I know how to roll with the best of them.
I have learned that I have a big heart with big tears and there’s nothing I can do about that.
I have learned that I love to laugh, giggle, snicker, and that sometimes I laugh when I really “shouldn’t” but I just can’t seem to help myself
I have learned to value my children, my humor, my faith, and my friends, without them, I am not happy.
I have learned that a lot of life’s lessons are not learned the easy way, but the difference now is that I know I will get through it.
I have learned that I am an amazingly strong woman and that I am not done with living.
So now that I am 50, I know it is perfectly OK to be a kid, a crabby ol’ lady, a mother who dotes on her kids, a teacher, a learner, a believer in God, a friend, a loner, and a goofball. I know this is me and I know that there is a whole new story just waiting to begin now that I’m 50.

Signed Happily by,
Me, myself and I at age 50
“Cancer will not win, will not color my world, and I am not done living.”
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